Your privacy is our top priority.
Heroes Health Initiative (Heroes Health, “the Initiative”) knows you care about how your information is used and shared. Protecting your privacy is our top priority. Please read the following to learn more about how we use and protect information collected through the Initiative’s website, mobile interface(s), and related services (the “Services”).
Your use of the Services will allow you to provide us with Personal Information, including but not limited to, information about yourself, your symptoms, and your satisfaction with your institution. The Initiative collects your Personal Information for the purposes of a research study being conducted at the University of North Carolina at Chapel Hill (“UNC”) called “Supporting COVID-19 Healthcare Workers during the COVID-19 Pandemic” (the “Initiative”). If you choose to use the Services to provide us with any Personal Information, you must first review and acknowledge the informed consent form for the Initiative.
We do not knowingly collect or solicit Personal Information from anyone under the age of 18 or knowingly allow such persons to register for the Services. If you are under 18, you must not attempt to register for the Services and you must not send any information about yourself to us, including but not limited to your name, address, telephone number, or email address. In the event that we learn that we have collected Personal Information from a person under age 18, we will delete that information. If you believe that we might have any information from or about a person under the age of 18, please contact us at firstname.lastname@example.org.
What information does the Initiative collect?
The Initiative will obtain information from you in two ways. The first is information that you manually enter. The second is information that is collected automatically to track your usage.
Information you manually enter:
We receive and store any information you manually enter into the Services. Heroes Health will ask you to enter information including, but not limited to, zip code, age, gender identity, race, ethnicity, marital status, phone number, email address, occupation, COVID-19 infection status, and mental health symptoms. In the future we may collect additional health-related information as the Initiative is further developed.
Information collected automatically:
The Program may automatically receive technical information relating to your usage of the Services such as your operating system, device, features used, content viewed and downloaded, the dates and times of your interactions with the Services and other information. We may use this information to understand, customize, and improve user experience with the Services and the Initiative. For example, we may engage analytics services to analyze this information in order to help us understand how visitors engage with and navigate the Services, how and when features within the Services are used, and by how many users.
We may use your data to communicate with you, including through push notifications. We will not send you any unsolicited marketing or spam and will take all reasonable steps to ensure that we comply with our obligations under applicable state and federal law. If you no longer wish to receive push notifications, you can disable them by updating your notification settings under the “My Account” menu or withdraw from the Initiative by selecting “Leave Study” under the “Resources” tab at any time through your mobile device. You may also withdraw from the Initiative by removing the Heroes Health mobile application from your device at any time.
Is Personal Information about me secure?
Protecting the privacy of the Personal Information we hold in our records is our highest priority, but we cannot guarantee complete security. Unauthorized entry or use, hardware or software failure, and other factors, may compromise the security of your Personal Information at any time.
The following safeguards have been established to ensure the security of Personal Information collected:
To minimize the risk to confidentiality, assessment data are always treated as confidential. All data will be entered and stored on the Google Cloud Platform, which is encrypted and housed on secure servers at Google, Inc. Personally identifying information and participant data will never be stored in the same physical location. In addition, because sensitive information is to be collected regarding participants’ mental health, a Certificate of Confidentiality will be obtained after IRB approval. All research personnel involved in Heroes Health will have completed training in the protection of human research participants per the guidelines issued by the United States Department of Health and Human Services, Office for Human Research Protection. Training of staff will include information about the importance of confidentiality and techniques to maintain confidentiality of all information reported by research participants. All research personnel will sign a pledge of confidentiality and understand that violation of confidentiality is reason for dismissal.
Will the Initiative or UNC share any of the information it receives?
For COVID-19 workers who join the Initiative through a partnering institution (i.e. a healthcare entity with a signed institutional agreement with the Initiative), institution and unit leaders will receive a report of de-identified, aggregate data on the wellness of their teams. These reports will never contain identifiable study data (your name, date of birth, or email address) and will never contain reports on subgroups less than 10 workers, to protect worker anonymity (e.g., if there are less than 10 nurses reporting data within a particular unit, nurse-by-unit data will not be provided, and instead data will be provided at a higher level of aggregation).
Additionally, for workers who opt into sharing identifiable data with their employers, mental health survey results of those who are experiencing suicidal ideation or moderate-to-severe mental health symptoms will be available to institutional mental health worker(s) within 24 hours. These reports will be made available via secure delivery to a folder within Microsoft Teams and will allow partnered institutions to contact employees who are suffering and connect them with relevant resources and/or mental health care.
The information collected by the Services will not be shared with advertisers nor sold for advertising purposes. While data will be collected via the Heroes Health app housed in the Google Cloud Platform, Google Cloud or other external personnel will not have access to Heroes Health data stored on the cloud.
We reserve the right to disclose information collected through the Services as required by law, when we believe disclosure is necessary to comply with a regulatory requirement, judicial proceeding, court order, or legal process served on us, or to protect the safety, rights, or property of the Initiative, UNC or the public.
What choices do I have?
You may be able to add, update, or delete certain information as explained above. When you update or delete information, we may maintain a copy of the unrevised information in our records.
Questions or concerns?